Wednesday, August 14, 2013

Fighting Chance blog 12

Be CAREful what you wish for

Hi Readers,


I’m writing this in response to an article that I read on the website 6 years ago called “Chloe Jennings-White reveals she wants surgery so she can be permanently disabled”.

When I first read this, it was mind-boggling and it made my head spin for so many different reasons.

On the one side, you could say; What on earth is this woman thinking?! Shouldn’t she be counting her life’s blessings and appreciating it all?!  It wouldn’t cross the minds of most people to “fantasise” about disability; let alone strive towards having one.


Yet, this particular condition does in fact exist and is known as BIID (Body Integrity Identity Disorder). This psychological condition entails sufferers actively seeking elective body limb amputation in order to mirror their perceived “bodily whole” – the feeling could be likened to an individual born with six toes who firmly believes they should have five.

We all have our own “self-comparison” issues that we sometimes struggle with to the point they sometimes almost plague us but it is when we let them run our lives that they sometimes may turn into “addictive behaviours” and it is for this reason that I believe people with Chloe’s condition need thorough psychiatric oversight. If they were to literally go ahead with this, then they would need to be fully prepared…and I mean fully prepared for what’s in store for them. Generally, there are two known facts of life; the cycle of life and death, and the ‘unpredictable’ nature of life. As life is unpredictable humans have an innate sense of sympathy for those whom become victims of circumstance, but in this instance chance is being taken out of the equation which may lead people to see this as a selfish act and/or cry for attention especially because they don’t seem to take into account the impact that it will have on their lives and/or the lives of those around them.

With all that being said, where should we draw the line between the experimentation of an “outsider looking in” and actively working towards having a disability, especially considering the financial and emotional burden for all those involved?

I conclusively believe and feel that having my disability and living with it has helped me to appreciate and further understand that there is power in the knowledge that I am not invincible and neither is anybody else. I fully and wholeheartedly respect this without complaining about it or judging it, and although I, myself still sometimes have issues regarding self-comparison, I’ve gradually now reached a point where I’m able to consciously “choose” what role I wish for them to play throughout my own life.

I would appreciate your feedback on whether or not you’ve heard of anyone else with this condition.


You’re welcome to read the actual story on the link below and formulate your own opinions on it: https://pop.inquirer.net/46307/disabled-on-purpose-transabled-chloe-jennings-white .

Saturday, August 3, 2013

Touched by a family of beautiful angels

Those that are worthy of your attention do not
scream out loud and proclaim how amazing they are.
They draw you in with a knowing evident in every
step they take. They bow in humility as others see
their own greatness in their eyes. – Lenita Vangellis

What do get when you have a Greek Australian actress who is best known for playing Poppy Skouros on Neighbours and a hot bloke who is best known for being a 2005 Australian Idol contestant? Lenita Vangellis and James Kannis who are a mother-and-son duo that were both born into a beautiful family of angels and have both equally become ones each in their own way.
      
I would’ve never, in my wildest dreams, thought that writing a fan letter to one of my favourite singers who I also look up to a lot would change my life forever.

Here’s my personal take on the way in which I would describe James Kannis (as I’ve gotten to know him).

James immediately captivated me with his really soulful singing voice from the moment he stepped on to the audition stage of Australian Idol back in 2005 and as the competition went on, I saw such an angelic enlightenment of positivity in his personality that was so effortlessly-natural that you can’t help but be drawn into and be inspired by.

Eight years ago, I was one of the luckiest musical fans of his that got to receive this treatment above which did make such a difference in my life to the point where I decided to track him down and thank him in person...

So putting pen to paper in writing that fan letter was my first step in starting this journey...

My whole purpose for this letter was to request an interview with him to learn how he always maintains positive life attitude and his response was completely and amazingly unexpected: it turns out that he was just as equally inspired by me as I was by him (as his mother Lenita quotes it so eloquently).

The interview took place on April 7, 2009 which is a day I’ll never forget because it changed my life forever because I equally learnt just as much from interviewing him as well as from looking up to him.

I also established a great work rapport with his mum and got the opportunity to know her personally and wholeheartedly loved her just as equally as much as I loved James. 

We immediately hit off and got along well together at the interview and we decided to keep in contact and become friends thereafter which was nice...

James believes that I’m an inspiration to him because of my thriving and lively spirit combined with my victimlessly-motivational attitude to life, which is so kind of him to point out, let alone say.

I pretty much feel the same way about him and I also admire him (as I always say) mainly because, on a personal level, he’s one of the manliest people you could ever met yet deep inside he has this beautifully kind and soft heart that is filled with a limitless capacity of unconditional love that flows and shines through effortlessly and naturally towards whomever he meets.

I also got to form a lifelong bond with their amazing family as I got to visit Lenita’s parents (James' maternal grandparents) Matoula and George Psillakis on May 26, 2013 and I could reflectively say that I’m so proud to be associated with such a beautiful family full of angels in disguise as well as proud to call them part of my second family with Lenita Vangellis being like my second mum, spiritual mentor and friend and James Kannis as one of my role models, inspirational teacher and a really great friend who has become like a big brother to me and I’m so proud of them both.   

Love always Maria Makhoul.