PLEASE let love be

Hi Readers, 

I’m writing this article in response to an article that my Fighting Chance colleague Jo Berry called Too Many Taboos and while she’s focused on tailoring to be disability-specific, in my attempt, I’m going to focus on the whole kit and caboodle when it comes to disability struggles – from the well-meaning and/or controversial setups between friends and family, personal insecurities brought on by adversity and to achieving against all odds; and sharing stories chronicling all 3 aspects. 

When you often hear the term “I’m ‘smitten’ with somebody” then that’s usually an indication that they’re romantically involved with someone, so why should people with PLCs  (permanent lifetime challenges) miss out on everything romantic love has to offer? 

What is important for us to note is that people with PLCs are also human beings who have kind hearts that have the capacity to love, support and encourage others just like able-bodied people can and do, the only difference is that when it comes to being in intimate or romantic relationships, the sole challenge they face is that they need to make precise decisions regarding aspects of their relationship or where it might futuristically lead to. 

Let’s face it, whether you’re an able-bodied person or a PLC-affected person, I’m pretty sure that you’ve all had well-meaning friends and family members try to set you up on a date which all in all is fine, but where do you draw the line when you feel that your capacity to make individualistic decisions regarding your own relationship gets overtaken by everyone else’s perception of how and/or what the dynamic of your relationship should be like? 

Anyone who knows me personally will tell you that I’m fiercely-outspoken and a confident conversationalist who talks like a broken record to the point where you sometimes can’t get a word in edge-wise. This attribute particularly escalates when I get wholeheartedly captivated by others, and whilst it’s possible to enjoy somebody’s else company regardless of what gender they are, I still can’t see why it, in turn, has to therefore be misconstrued as me being in love with them.    

The most frustrating thing that I experience frequently is the fact that people often misperceive my right to open vocal self-expression for me being overly-obsessed in people. But why? Is it just societal norm? Could it be “gender ignorance”? Or could disability influence it? 

In my final years of school in 2006 and 2007, I was thrown into a classroom with males where I was the only female. Their personalities seemed “emotively immature”* which meant that I had to learn the “boys will be boys” lesson the hard way and I found this extremely difficult to deal with at times because I was the oldest of three girls who had male friends with conservative upbringings, so walking into this unfamiliar territory took me completely outside my comfort zone and on a big learning curve, that at times I found confronting. I think that learning about it in the school setting was helpful as opposed to being thrown smack-bang out in the real world because I had the support of my teachers and felt comfortable enough to talk to them about it.  

My testosterone-fueled school experience taught me how to relate better to males and that I can actually pursue a romantic relationshipn with one if I wanted to. 

Now, should the opportunity arise for me to score a date on my own terms as a result of this article and I feel wholeheartedly ready for it then so be it, I’ll happily take it. However, that is not what the general consensus of this article is about. 

PLC-affected sufferers have their own personal insecurities and therefore must remember that beauty isn’t just skin deep when it comes to love.  

Take for example, American war hero turned actor J.R. Martinez who received burns to 40% of his body (arms, hands and face) in a car explosion whilst deployed in the Iraqi war. After undergoing 34 reconstructive skin graft surgeries, he thought he might never find love and was quoted in an Entertainment Tonight interview as saying: 

“What girl is gonna feel comfortable kissing my scars on my cheeks and forehead?” 

Little did he realise that the truth in the saying of “beauty is in the eye of the beholder” would somehow ring true for him one day, because he’s now married and a father to one year-old daughter Lauryn.  

Then there’s Serbian Australian American-based motivational speaker and author Nick Vujicic who was born with no arms and legs and thought of suicide when he was just 8 years old. He never shied away from the idea he might find romantic love and get married and went on to achieve it despite adversity. He even said: 

“I may not be able to hold my wife’s hand but I am able to hold her heart.” 

Then when his wife Kanae got asked how she feels about her love life setting which came with a difference, she said:   

“To me it wasn’t any different falling in love with Nick, I fell in love with him the way he is now. Because I had dated other guys and I had gone for the physical, and you know, but I was tired of that, and the moment I met Nick I was looking for other things, and all those things I found them in him. So that’s when I felt like wow, he’s not only boyfriend material, but he’s like - he could be my husband.” 

He now is her husband and to her, he has “everything he needs” and now they’re the proud parents of one year-old son Kiyoshi.  

Regardless of what challenges you face in life, I conclusively feel that nothing should stop you from having relationships in whichever form they come in. Both platonic and romantic relationships are beautiful – there’s nothing wrong with girls and boys, men and women having close friendships with one another and have it be recognised as a normal part of life. Furthermore, the only people that should be making decisions about their own relationships are the people involved in the relationships themselves. 

You’re welcome to formulate your own opinion on the interview links that chronicle all 3 aspects and read my colleague Jo Berry’s article: 

Singer/songwriter Tina Arena on the well-meaning and/or controversial date setups between family and friends - http://au.news.yahoo.com/sunday-night/features/article/-/19330508/tina-arena/ . 

American war hero turned actor J.R. Martinez on finding love despite adversity - http://www.etonline.com/news/126416_JR_Martinez_Reveals_Shocking_Injury_Photos/index.html . 

Nick Vujicic on finding love against all odds: part 1: http://www.youtube.com/watch?v=B_-Ws_dhS44 and part 2: http://www.youtube.com/watch?v=WYB3QSLarLg .  

My colleague Jo Berry’s article - http://www.fightingchance.org.au/?p=904 . 

Emotively immature”: “Emotively immature” is a term that I’ve come up with to help me distinguish the difference between boys who wholly “live and embrace” the “boys will be boys” concept and the well-behaved “goody-two-shoes” boys.

Fighting Chance blog 16

PLEASE let love be

Hi Readers,

I’m writing this article in response to an article that my Fighting Chance colleague Jo Berry called Too Many Taboos and while she’s focused on tailoring it to be disability-specific, in my attempt, I’m going to focus on the whole kit and caboodle when it comes to disability struggles – from the well-meaning and/or controversial setups between friends and family, personal insecurities brought on by adversity and to achieving against all odds; and sharing stories chronicling all 3 aspects.

When you often hear the term “I’m ‘smitten’ with somebody” then that’s usually an indication that they’re romantically involved with someone, so why should people with PLCs  (permanent lifetime challenges) miss out on everything romantic love has to offer?

What is important for us to note is that people with PLCs are also human beings who have kind hearts that have the capacity to love, support and encourage others just like able-bodied people can and do, the only difference is that when it comes to being in intimate or romantic relationships, the sole challenge they face is that they need to make precise decisions regarding aspects of their relationship or where it might futuristically lead to.

PLC-affected sufferers have their own personal insecurities too and therefore must remember that beauty isn’t just skin deep when it comes to love.

Take for example, American war hero turned actor J.R. Martinez who received burns to 40% of his body (arms, hands and face) in a car explosion whilst deployed in the Iraqi war. After undergoing 34 reconstructive skin graft surgeries, he thought he might never find love and was quoted in an Entertainment Tonight interview as saying:

“What girl is gonna feel comfortable kissing my scars on my cheeks and forehead?”

Little did he realise that the truth in the saying of “beauty is in the eye of the beholder” would somehow ring true for him one day, because he’s now married and a father to one year-old daughter Lauryn.

Then there’s Serbian Australian American-based motivational speaker and author Nick Vujicic who was born with no arms and legs and thought of suicide when he was just 8 years old. He never shied away from the idea he might find romantic love and get married and went on to achieve it despite adversity. He even said:

“I may not be able to hold my wife’s hand but I am able to hold her heart.”

Then when his wife Kanae got asked how she feels about her love life setting which came with a difference, she said:

“To me it wasn’t any different falling in love with Nick, I fell in love with him the way he is now. Because I had dated other guys and I had gone for the physical, and you know, but I was tired of that, and the moment I met Nick I was looking for other things, and all those things I found them in him. So that’s when I felt like wow, he’s not only boyfriend material, but he’s like – he could be my husband.”

He now is her husband and to her, he has “everything he needs” and now they’re the proud parents of one year-old son Kiyoshi.

Regardless of what challenges you face in life, I conclusively feel that nothing should stop you from having relationships in whichever form they come in. Both platonic and romantic relationships are beautiful – there’s nothing wrong with girls and boys, men and women having close friendships with one another and have it be recognised as a normal part of life. Furthermore, the only people that should be making decisions about their own relationships are the people involved in the relationships themselves.

You’re welcome to formulate your own opinion on the interview links that chronicle all 3 aspects and read my colleague Jo Berry’s article:

Singer/songwriter Tina Arena on the well-meaning and/or controversial date setups between family and friends - http://au.news.yahoo.com/sunday-night/features/article/-/19330508/tina-arena/

American war hero turned actor J.R. Martinez on finding love despite adversity - http://www.etonline.com/news/126416_JR_Martinez_Reveals_Shocking_Injury_Photos/index.html

Nick Vujicic on finding love against all odds: part 1: http://www.youtube.com/watch?v=B_-Ws_dhS44 and part 2: http://www.youtube.com/watch?v=WYB3QSLarLg

My colleague Jo Berry’s article - http://www.fightingchance.org.au/?p=904

Fighting Chance blog 15

The Value of Carers

Parenting is the hardest job in the world especially if you have children with special needs and/or children who acquire PLCs “Permanent Lifetime Challenges” later on in their lives. While most parents look to either respite centres or youth disability recreation centres as a means to get routine breaks, the next question now becomes: how does a parent continuously implement and maintain a sense of social normality and balance outside of their child’s disability? Perhaps consider this alternative: a carer.

When I was growing up, my parents always insisted that I’d treat myself the same way as everyone else and conduct myself with complete normalcy (whether it’s with my attitude and/or my physical capabilities) and while they encouraged me to try respite and a youth disability recreation centre – I on the other hand, felt that they were a periodic-to-temporary fix for me because I knew deep down, that there was a place of societal normalcy within my reach, outside of my disability which I have strived towards, and successfully fought for.

Personally, I’m a really talkative person; a good conversationalist who is also sociably interactive. I love that I can structure and plan my own activities as I am relatively physically and psychologically capable. However, I sometimes feel that my sociability gets hindered by the fact that my only means of independence is then defined by disability agencies and event placements. I get told that I can only go X number of kilometres on a given day, and am only allotted a community access carer 2x per week. As a result, if an event or something I wish to do is outside of those allowances, and my parents can’t take me, bad luck for me, which I feel is completely unfair to me and/or anyone else in my position.

This is where the role of carers comes in because they’re able to provide and help you maintain a sense of social independence that everyone yearns for and a positive relationship with your carer is imperative, you need to find someone who will encourage you to be social, and is willing to go the extra mile to make sure you get the life you deserve. The “extra mile” entails putting in the energy to develop a good client-carer relationship (even friendship) with open communication, being open to trying new and different experiences, despite the effort required to participate in these things, and even sometimes suggesting them.

Unfortunately carers like this are rare and finding one involves navigating a veritable minefield or different agencies. When you do feel that you have found someone suitable you then have to take into account whether they are genuine or if it is a façade, which ultimately begs the question of how much their care has to do with gaining money, versus doing it as a humanitarian cause. Regrettably some carers are just money hungry, doing the minimum amount of work while trying to get as much money out of the work they do. An example of this is refusing to work any day but Saturday or Sunday, despite having the time to work during the week.

The quality carers I have had, have made the world of difference for me, and were worth the minefield I went through to find them, I’m the most sociably active I have been in my life, and it’s a load off my parents. So if you’ve ever thought about getting a carer, I would give it a go!

Fighting Chance blog 14

How Do We Treat Today’s Good Samaritans?

I’m writing this article in response to a Youtube video I watched by American entrepreneur, author, and humanitarian activist Dan Pallota whom has funded hugely successful charitable causes such as bike rides for AIDS and three-day breast cancer walks.

In his video, The way we look at charity is dead wrong Dan Pallota challenges and highlights the difference in our standards and views imposed on and towards not-for-profit organisations in comparison to profitable organisations.

Let’s think about big companies would they be successful would they prosper if they didn’t invest any money in advertising in staff, in training and in campaigns? I would suggest not. So why then are not for profit organisations not granted the same ideals?? To an extent of course. A charitable organisation cannot possibly invest 100% of its funds directly into the individuals it supports but rather must use a portion of these funds to promote their work, advertise the difference they are making in the lives of the people they support and importantly pay their staff and cover their rental costs… If an organisation is not able to do this it is not able to prosper!

Take for example Fighting Chance which is a youth led not-for-profit organisation who help support people with disabilities gain employment and social inclusion. They do this by bringing funding through community participation, but also deal in supported employment opportunities, and currently have 30 program participants (who bring funding), 5 paid staff, and numerous volunteers who help with various events. It was built from the ground up and is now a self-sustained business. From a professional standpoint, it’s common sense to consider and understand that we need to sometimes split donation money and put it towards administrative and/or advertising costs.

This means donations now go into improving the company which helps them to ensure that all clients and interns get helped equally and accurately for example – purchasing a wheelchair accessible van which increases the amount of people FCA can assist, thereby increasing funding and quality of life. The reason behind all this can be found on the Fighting Chance Australia website “and ultimately it is beholden on us all to see these problems and do something about them”.

Arguably some of the money donated to charities needs to be invested into improving the awareness and functionality of the charity, which requires paying people to think innovations and other general managerial tasks. However, as Dan Pallotta pointed out people have an aversion to the idea that charities should be investing the money they have donated into the company instead of giving it to the recipients of the charitable help.

Honestly in yourself, if given the choice would you support the “100% of donations go to the kids” style charity or the more “atypical” charity which invests 20% into the betterment of their organisation and 10% to their staff, and 70% to the kids? Consider the way in which a “successful” business operates, if they were to avoid investing in their own future, would you still consider them successful? Why is it that we set double standards in our society, with more leniency towards profit organisations as opposed to not for profit organisations when in fact the latter is made to contribute more to our societal growth?

Conclusively, we need to change our societal standards for charities and charitable giving, while not all charities will be able to become self-sustainable, and there will always be a need for donations, but let’s broaden our minds and start to grant not for profit organisations the freedom and trust to spend their money in a way that see fit, Knowing that they will be held accountable in the end.

Let’s keep supporting the charities that support our community. In the immortal words of Albert Pike:

“What we have done for ourselves dies alone with us, what we have done for others and the world remains and is immortal.”

You’re welcome to watch Dan Pallotta’s video and formulate your own opinion at http://www.youtube.com/watch?v=bfAzi6D5FpM .

Fighting Chance blog 13

The NDIS: Why can’t beggars be choosers? It’s my life not yours!

Today I’m reviewing several articles of differing opinion regarding the National Disability Insurance Scheme (NDIS), but I’ll try my very best to balance it out.

First to step into the arena was disability advocate and Ramp up writer Stella Young, then two journalists Claire Porter and Matt Young weighed in on the case with very different opinions.

Stella Young wrote an article speaking about the importance of implementing the NDIS she made particular reference to the fact that the maximum current funding for wheelchairs in Victoria is $8000. Her new wheelchair, which she bought to replace her 17 year-old wheelchair, and is not a particularly fancy version set her back $22000, which leads me to question how many people would have a spare $14000 lying around to be spent if their sole mobility aid were to be irreparably broken on any given day.

Stella reached out to then Prime Minister Julia Gillard asking her to negotiate using the Medicare levy to somehow help pay for the NDIS as she feels the question is not why we are implementing this now, it is why haven’t we done it sooner?

Although former Prime Minister Julia Gillard happily agreed to work towards getting funding for the NDIS, the question that still hereby remains is whether or not the money which has been designated for the NDIS is then going to be spent wisely.

 Claire encourages people to think more precisely and start being more financially self-sufficient with our spending habits in order to help the needy out enough as much as possible, whereas Matt is hereby cautious about it and has his valid reasons as to why, I feel that he’s comparing to the baby bonus scheme and/or living on welfare and wouldn’t want perfectly well-off families to take advantage of the system and/or exploit its purpose.

Matt also understands that lots of advertising tools went into running and making this campaign a reality, but feels that the government is putting too much pressure on members of the public to sympathise with and/or “blindly” donate as much as possible even if it entails them to sometimes or always go beyond their means to do so.

Now from where I stand, I can understand Matt’s reservation and disagree with the way that the government has turned this into a pity party. Besides this, I feel that the government should’ve put this in place a lot earlier because I know of people who’ve had to go on waiting lists and/or enlisted the help of outside facilities to gain desperately needed mobility equipment, for even up to 2 years in some cases. Imagine how it would feel to be a non-verbal person socially having to deal the pressures of everyday life without a communication device, and getting frequently frustrated as a result of being misunderstood and/or misheard.

My overall notion of the reason as to why the NDIS was put in place to begin with is, to help assist people with disabilities with monetary grants and/or mobility equipment to help ensure that they have a further capacity to improve their quality of life and/or independence.

I feel that this scheme should especially focus on those who live independently from their parents because, some people’s personal health and hygiene are sometimes suffering because of a lack of funding which is unfair to anyone, let alone someone with a disability. Lillian Andren disclosed in the productivity commission hearing that as a person with daily incontinence issues, she’s then entitled to three showers a week compared to a continent person who is entitled to two showers a week. Which begs the question, why is it okay to sit in one’s own filth for 4/7 days, but not 5/7, is 4/7 not still a majority? Isn’t 1/7 already too much?

So, conclusively on that note I’d now like to challenge Matt and propose that he meet with just one person whom this scheme would benefit, and see whether or not he as a result, has a change of heart towards this issue.

More to come, as the revelations continue…!

You’re welcome to formulate your own opinion from these links:

Stella Young:

- http://www.abc.net.au/news/2011-12-05/young-national-disgrace-disability-support/3711926

-http://www.abc.net.au/rampup/articles/2013/05/01/3749022.htm

Matt Young and Claire Porter:

- http://www.news.com.au/opinion/would-you-pay-300-to-support-the-disabled/story-fnh4jt54-1226632202988

Fighting Chance blog 12

Be CAREful what you wish for

Hi Readers,

I’m writing this in response to an article that I read on the website 6 years ago called “Chloe Jennings-White reveals she wants surgery so she can be permanently disabled”.

When I first read this, it was mind-boggling and it made my head spin for so many different reasons.

On the one side, you could say; What on earth is this woman thinking?! Shouldn’t she be counting her life’s blessings and appreciating it all?!  It wouldn’t cross the minds of most people to “fantasise” about disability; let alone strive towards having one.

Yet, this particular condition does in fact exist and is known as BIID (Body Integrity Identity Disorder). This psychological condition entails sufferers actively seeking elective body limb amputation in order to mirror their perceived “bodily whole” – the feeling could be likened to an individual born with six toes who firmly believes they should have five.

We all have our own “self-comparison” issues that we sometimes struggle with to the point they sometimes almost plague us but it is when we let them run our lives that they sometimes may turn into “addictive behaviours” and it is for this reason that I believe people with Chloe’s condition need thorough psychiatric oversight. If they were to literally go ahead with this, then they would need to be fully prepared…and I mean fully prepared for what’s in store for them. Generally, there are two known facts of life; the cycle of life and death, and the ‘unpredictable’ nature of life. As life is unpredictable humans have an innate sense of sympathy for those whom become victims of circumstance, but in this instance chance is being taken out of the equation which may lead people to see this as a selfish act and/or cry for attention especially because they don’t seem to take into account the impact that it will have on their lives and/or the lives of those around them.

With all that being said, where should we draw the line between the experimentation of an “outsider looking in” and actively working towards having a disability, especially considering the financial and emotional burden for all those involved?

I conclusively believe and feel that having my disability and living with it has helped me to appreciate and further understand that there is power in the knowledge that I am not invincible and neither is anybody else. I fully and wholeheartedly respect this without complaining about it or judging it, and although I, myself still sometimes have issues regarding self-comparison, I’ve gradually now reached a point where I’m able to consciously “choose” what role I wish for them to play throughout my own life.

I would appreciate your feedback on whether or not you’ve heard of anyone else with this condition.

You’re welcome to read the actual story on the link below and formulate your own opinions on it: https://pop.inquirer.net/46307/disabled-on-purpose-transabled-chloe-jennings-white .

Touched by a family of beautiful angels

Those that are worthy of your attention do not

scream out loud and proclaim how amazing they are.

They draw you in with a knowing evident in every

step they take. They bow in humility as others see

their own greatness in their eyes. – Lenita Vangellis

What do get when you have a Greek Australian actress who is best known for playing Poppy Skouros on Neighbours and a hot bloke who is best known for being a 2005 Australian Idol contestant? Lenita Vangellis and James Kannis who are a mother-and-son duo that were both born into a beautiful family of angels and have both equally become ones each in their own way.

      
I would’ve never, in my wildest dreams, thought that writing a fan letter to one of my favourite singers who I also look up to a lot would change my life forever.

Here’s my personal take on the way in which I would describe James Kannis (as I’ve gotten to know him).

James immediately captivated me with his really soulful singing voice from the moment he stepped on to the audition stage of Australian Idol back in 2005 and as the competition went on, I saw such an angelic enlightenment of positivity in his personality that was so effortlessly-natural that you can’t help but be drawn into and be inspired by.

Eight years ago, I was one of the luckiest musical fans of his that got to receive this treatment above which did make such a difference in my life to the point where I decided to track him down and thank him in person...

So putting pen to paper in writing that fan letter was my first step in starting this journey...

My whole purpose for this letter was to request an interview with him to learn how he always maintains a positive life attitude and his response was completely and amazingly unexpected: it turns out that he was just as equally inspired by me as I was by him (as his mother Lenita quotes it so eloquently).

The interview took place on April 7, 2009 which is a day I’ll never forget because it changed my life forever because I equally learnt just as much from interviewing him as well as from looking up to him.

I also established a great work rapport with his mum and got the opportunity to know her personally and wholeheartedly loved her just as equally as much as I loved James. 

We immediately hit off and got along well together at the interview and we decided to keep in contact and become friends thereafter which was nice...

James believes that I’m an inspiration to him because of my thriving and lively spirit combined with my victimlessly-motivational attitude to life, which is so kind of him to point out, let alone say.

I pretty much feel the same way about him and I also admire him (as I always say) mainly because, on a personal level, he’s one of the manliest people you could ever met yet deep inside he has this beautifully kind and soft heart that is filled with a limitless capacity of unconditional love that flows and shines through effortlessly and naturally towards whomever he meets.

I also got to form a lifelong bond with their amazing family as I got to visit Lenita’s parents (James' maternal grandparents) Matoula and George Psillakis on May 26, 2013 and I could reflectively say that I’m so proud to be associated with such a beautiful family full of angels in disguise as well as proud to call them part of my second family with Lenita Vangellis being like my second mum, spiritual mentor and friend and James Kannis as one of my role models, inspirational teacher and a really great friend who has become like a big brother to me and I’m so proud of them both.   

Love always Maria Makhoul.    


         

     

   

Fighting Chance blog 11

DisabilityCare

Hi Readers,

I’m writing this article in response to a Sydney Morning Herald article DisabilityCare’s name “close to being hated”.

In my response, I will explain my view of the words “disability” and “care” and suggest they are not in fact patronising or offensive when placed together, but I can understand the reasons for how and/or why it can controversially turn heads and divide opinions.

The purpose of the NDIS implemented with the name DisabilityCare was brought together as a unique and interesting concept which aims to help increase the independence of people with disabilities and through advertising educate the general public about the needs and capabilities of individuals living with a disability.

It is important to note that in some ethnicities having a disability is sometimes seen as a “stigma” so I can understand the freeing sense in saying you have a “disability” in a liberal and accepting country like Australia, but where do you draw line in terms of its perceptions and/or connotations? Are people being too sensitive?

In my Fighting Chance blog The prejudice of words, I explained the meaning of the word disability being a handicap that leaves one unable to do something and then suggested the use for the abbreviative term PLC (Permanent Lifetime Challenge) which I find more empowering, and perhaps a new abbreviative term I’ve now come up with called NNPLC (New Normal Permanent Lifetime Challenge) – for people who inherit challenges (e.g.: Sophie Delizio).

My next suggestion might be hotly contested but personally I’d much prefer the name be Special Needs Care purely because I’d like to see the NDIS provide/fund communication and mobility equipment to those who need it and also for there to be centres run by psychologists, social workers, youth and crisis workers and counsellors to help support disabled individuals and their families. These are the issues that matter! The name is simply an insignificant detail for the majority of those who will benefit the greatest from this new scheme.

I’d encourage you to realise that the word and/or term “care” isn’t as patronising after all because of the fact that there needs to be a realistic perspective kept and/or reserved for those who inherit and/or acquire physical or intellectual challenges. Examples:

- If you required chemotherapy for cancer treatment, then you would need care.

- If you get your limbs amputated from diabetes, then your needs become special which will then entail you to need care.

I guess the bottom line conclusively is that what we have proven is that words have significant power to denote certain feelings it’s all in how they’re used, perceived and/or how well they resonate with people that divide opinion, we must however not lose sight of the bigger picture: DisabilityCare will change thousands of lives for the better… regardless of the name.